Press release - 25 February 2016
For better access to diagnosis and treatment of rare diseases - forum founded
In the context of the International Rare Disease Day on 29 February 2016, the Rare Disease Action Forum (RDAF) was founded by Curatis, Santhera Pharmaceuticals, SFL, Shire and Vertex, companies active in the pharmaceutical and biotechnology sector.
About the forum
The purpose of RDAF is to serve as a platform to exchange ideas and define actions to raise awareness of rare diseases and to improve access to treatment and patient care in Switzerland.
RDAF brings together experts from companies developing and/or commercializing treatments, diagnostics, or providing any related service in the area of rare diseases and additional experts in the field of rare diseases.