About the forum
The purpose of RDAF is to serve as a platform to exchange ideas and define actions to raise awareness of rare diseases and to improve access to treatment and patient care in Switzerland.
RDAF brings together experts from companies developing and/or commercializing treatments, diagnostics, or providing any related service in the area of rare diseases and additional experts in the field of rare diseases.
News - 13 July 2017
ProRaris, the Swiss rare diseases patient alliance, launched a petition regarding Swiss participation in European Reference Networks (ERNs)
ProRaris calls for Swiss authorities to take urgent actions to enable participation of Swiss healthcare providers and reference centers for rare diseases in the European Reference Networks (ERNs). Swiss healthcare providers are currently unable to be part of the ERNs due to the prevailing political situation. The RDAF supports the petition as participation in the ERNs is vital to maintain Switzerland’s attractivity in the area of research as well as to improve the availability and quality of treatments and care for patients with rare diseases.