Who we are
The RDAF is a unique not-for-profit multi-stakeholder organization in the field of rare diseases in Switzerland. It aims to increase awareness about rare diseases and achieve adaptations of the Swiss regulatory framework to improve patients’ access to diagnosis, treatment and care.
We bring together patient and research organizations, industry and healthcare providers active in the rare disease area to exchange experiences and perspectives and define solutions for joint action.
Rare disease summit
Taking place on 26 November 2024 in Bern Switzerland, the Swiss Rare Disease Summit endeavors to forge a collective vision and roadmap for improvements in the diagnosis, treatment and care for patients with rare diseases. The multistakeholder event brings together representatives from patients, healthcare and research organizations, authorities and industry for a constructive dialogue on a joint aspiration for the coming decade as well as tangible next steps and aims to serve as a catalyst for transitioning AWARENESS to ACTION.
Download the flyer: English – Deutsch – Français
Our mission
Raise awareness about the challenges the rare disease community faces
Shape the regulatory framework in the field of rare diseases in Switzerland
Enable equal and fair access to diagnosis, treatment and care for patients with rare diseases
United action
RDAF activities
Check out our brochure to learn more about the RDAF and its activities.
