The purpose of RDAF is to serve as a platform to exchange ideas and define actions to raise awareness of rare diseases and to improve access to treatment and patient care in Switzerland.


RDAF brings together experts in the field of rare diseases.


Fürst-Ladani, Shayesteh; President (SFL Pharma)

Kessler, Reto (Vertex)

Lal, Rea (Pfizer)

Minder, Elisabeth (Porphyria)

de Sá, Jacqueline (ProRaris)

Strebel, Alessandro (Roche)

Uttenweiler, Andreas (Takeda)


Rare Disease Action Forum

c/o SFL Regulatory Affairs & Scientific Communication GmbH

Aeschenvorstadt 52, CH-4051 Basel, Schweiz