About the forum

The purpose of RDAF is to serve as a platform to exchange ideas and define actions to raise awareness of rare diseases and to improve access to treatment and patient care in Switzerland.

 

RDAF brings together experts from various stakeholders in the field of rare diseases.

RDAF Brochure.pdf

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Latest News

MORBUS WILSON SCHWEIZ JOINS THE RARE DISEASE ACTION FORUM

News - 14 June 2021

We are proud to welcome Morbus Wilson Schweiz as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members including industry, patient organizations, healthcare professionals, and research organizations. We look forward to their contribution to the collaborative efforts at the RDAF multi-stakeholder platform. Together we will continue our efforts to improve access to diagnosis, treatment and care for patients with rare diseases in Switzerland.

The RDAF organizes a multi-stakeholder workshop on registries for rare diseases on 30 June 2021

News - 20 May 2021

The RDAF will host a virtual multi-stakeholder workshop dedicated to ‘Registries for rare diseases in Switzerland’ on 30 June, 2:00-5:00 pm (CEST). The workshop aims to discuss the Swiss Rare Disease Registry and disease specific registries and to define pathways to foster the development and synergies between them.

Experts in the field of rare diseases from patient organizations, industry, healthcare professionals and public authorities will share their perspective and engage in discussions about the opportunities and challenges for registries for rare diseases.

Registration link