About the forum

The purpose of RDAF is to serve as a platform to exchange ideas and define actions to raise awareness of rare diseases and to improve access to treatment and patient care in Switzerland.

 

RDAF brings together experts from various stakeholders in the field of rare diseases.

RDAF Brochure.pdf

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Latest News

News - 28 September 2020

Retina Suisse and the Swiss Hemophilia Society (SHG) join the Rare Disease Action Forum

We proudly welcome the patient organizations Retina Suisse and the Swiss Hemophilia Society (SHG) as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members from industry, patient organizations, healthcare professionals, and research organizations. We look forward to their contribution to the collaborative efforts at the RDAF multi-stakeholder platform. Together we will continue our efforts to improve access to diagnosis, treatment and care for patients with rare diseases in Switzerland.

 

News - 02 September 2020

Biogen and Prof. Dr. Pascal Escher join the Rare Disease Action Forum

We are proud to welcome Biogen and Prof. Dr. Pascal Escher as the newest members of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members from industry, patient organizations, healthcare professionals, and research organizations. We look forward to their contribution to the collaborative efforts at the RDAF multi-stakeholder platform. Together we will continue our efforts to improve access to diagnosis, treatment and care for patients with rare diseases in Switzerland.