About the forum

The purpose of RDAF is to serve as a platform to exchange ideas and define actions to raise awareness of rare diseases and to improve access to treatment and patient care in Switzerland.


RDAF brings together experts from various stakeholders in the field of rare diseases.



Latest News

News - 16 March 2020

The 8th Rare Diseases Summer School (Rare Disease Initiative Zurich) will focus on a wide variety of subjects in the arena of rare diseases, from disease mechanisms and animal models, to improving diagnoses and novel therapeutics. There will be lectures by national and international rare disease experts, workshops, poster viewing sessions and selected oral presentations by participants.

The school addresses clinicians, physician-scientists, postdocs, and PhD students as well as select students from various disciplines such as medicine, biology, pharmaceutical science, psychology, sociology, and related fields. Participants are expected to bring a poster about their work or research interests related to rare diseases. See here for Further Information.

The Rare Disease Initiative Zurich (radiz) is a collaboration between the Children's Hospital Zurich, the University of Zurich, and the University Hospital Zurich, and is supported by the RDAF.


News - 29 February 2020

The Rare Disease Action Forum welcomes the Rare Disease Day

While rare means rare for each individual disease, rare becomes many across all those diseases that affect 300 million people and their families who have to cope with these diseases and their impact on quality of life and life expectancy.


The Rare Disease Action Forum joins in and shares the message of the rare disease community to raise awareness for patients with a rare disease in Switzerland. In this respect, we extend special congratulations to ProRaris, the Swiss umbrella organization of patients with rare diseases. ProRaris, an RDAF member organization celebrates its 10th anniversary and it’s 10th Rare Disease Day in Switzerland this year.