About the forum
News - 10 December 2020
RDAF submits statement to the public consultation on cost-containment measures in the healthcare sector
The Rare Disease Action Forum shared with the Swiss Federal Office of Public Health its statement on the public consultation on the revision of the Federal Health Insurance Act concerning package 2 of the cost containment measures.
The RDAF highlighted measures that could potentially affect patients with rare diseases and stressed that any implementation would need to take into consideration the specificities of rare diseases and their therapies. It is important to take account of indirect costs of a disease for those affected and their families, and that access to therapies can be achieved as quickly as possible.
Click to open the RDAF statement.
News - 28 September 2020
Retina Suisse and the Swiss Hemophilia Society (SHG) join the Rare Disease Action Forum
We proudly welcome the patient organizations Retina Suisse and the Swiss Hemophilia Society (SHG) as the newest member of the Rare Disease Action Forum. Reinforcing RDAF’s multi-stakeholder approach, they will be joining our other members from industry, patient organizations, healthcare professionals, and research organizations. We look forward to their contribution to the collaborative efforts at the RDAF multi-stakeholder platform. Together we will continue our efforts to improve access to diagnosis, treatment and care for patients with rare diseases in Switzerland.