News - 26 March 2019
RDAF welcomes new board members in 2019
In March 2019, the General Assembly of the Rare Disease Action Forum (RDAF) elected the Forum’s board, welcoming two new board members: Dr. Pierre Morneau, General Manager at Takeda Switzerland and Dr. Saskia Karg, Project Lead Rare Diseases at the University Children’s Hospital Zürich.
The two new board members succeed Ms Rute Fernandes, General Manager at Takeda Switzerland and Matthias Heck, Director Global Value, Access and Policy at Alexion who did not run for reelection.
The secretariat would like to thank Rute Fernandes and Matthias Heck for the considerable expertise and great contributions made as a board members of the RDAF. The new board composition reaffirms the multistakeholder approach of the Forum. The RDAF is looking forward to continuing its efforts to facilitate the development of sustainable solutions that improve the situation of patients with rare diseases in Switzerland.
News - 28 February 2019
TODAY IS #RAREDISEASEDAY
On 2 March 2019, ProRaris, the Swiss patient umbrella organization for rare diseases, will host the 9th Rare Disease Day meeting in Basel, Switzerland. The aim of this event is to raise awareness and generate momentum to further improve the situation for patients with rare diseases. The Rare Disease Action Forum (RDAF), a multi-stakeholder platform for rare diseases in Switzerland, will attend the event in Basel.
This year’s focus is on how to improve integration of patients isolated by their rare diseases into supportive networks within the Swiss community and health system.